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Stricken with spastic cerebral
palsy since he was born, the diagnosis for Adrian Starks
to continue a meaningful life was dire.
At birth, Adrian stopped breathing three times before
being revived.
His body has constant, involuntary movements
known as Choreoathetosis.
Failing to develop normally, and completely
locked up by his disability,
Adrian was once
considered profoundly retarded.
Another setback for
Adrian
came at the age of six when his mother, a custodian for
the Memphis City Schools, died of a massive heart
attack. Six
months later, his father, a roofer, passed away.
Despite the loving care from his maternal Aunt,
Mrs. Gloria Evans, the demands of physically bathing,
feeding and diapering became too much for her.
By the age of 13,
Adrian’s family decided to place
him with SRVS and since then, he has progressed into a
functioning and independent individual capable of
communicating and delivering messages to anyone willing
to listen.
Instrumental to
Adrian’s recovery was connecting
him with a communication device which is mounted to his
wheelchair.
The controlling device is located behind his head inside
a head rest.
In order for the computer to talk for him and
print out messages, Adrian must position his
head at various angles to tap his head piece which
lights up a keyboard of picture symbols to create
sentences.
Imagine tapping into a
communication device for every single word you wish to
utter. Most
people would give up such a challenge or grow tired of
working with someone who must use this equipment to
communicate.
Not Adrian, and not his direct support staff and
various therapists at SRVS.
Together they have accomplished
what others thought would be impossible.
Now 25 years old, Adrian recently made the move
from living in an Intermediate Care Facility (ICF) for
the chronically and medically fragile, to Hannah Home, a
Community Living IV arrangement that provides around the
clock support for independent living.
His move to Supported Living from ICF is the
first in several years.
His Direct Support Staff, Gary Mason, has been
with Adrian since his days at the Whitney Group Home.
“He’s my friend and I don’t treat him any
different than anyone else!
He can understand more than people give him
credit for,” boasts Gary.
“I am able to use my Pathfinder
(equipment) to communicate and use in word documents and
access the internet,” taps Adrian, “and I love to work
on my computer and plan to return to school to take
computer classes.”
In fact, Adrian has become so adept at speaking
that he has recited stories and songs to kids at day
care centers, taught classes at SRVS on meal time and
physical challenges, was an advocate board member of
Community Services Network, and was accepted as a
traveling ambassador for the Prentke Romich Company,
makers of the Pathfinder.
As a company representative, Adrian will be paid
per diem and has future plans to be fully employed.
His life experience can help educate and inform
the public about opportunities for the developmentally
disabled.
Adrian’s aunt is very excited about
his progress, “I’m just happy he is so happy, and I
don’t have to worry like before.”
She couldn’t believe he would ever read, let
alone make presentations in front of crowds.
Although fully dependent on staff and therapists
for his care, Adrian’s new supported living environment
has given him more freedom to determine his lifestyle.
He now shares a home with one roommate, plans his menu
and outings on his computer, uses email, attends
concerts and Friday night dances at the Skinner Center,
and loves to visit with friends and family.
As his DSP Gary will testify, “Adrian wants to be one of
the group. The
only thing that slows him down is his handicap.
Otherwise, he’s unstoppable!”
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